Grange Fair

Ferris Wheel fun! It's not the summer for Bryan unless he goes to the annual Middletown Grange Fair. This event ranks up there in importance to his birthday, family vacations, and Christmas. However, this year was different than the almost-forty years Bryan has attended with Ed and I. This time he invited his new roommate,…

…GO!!

A new place to live! My worst fears were realized. Bryan's initial move-in date of early July came and went. Then a new date was proposed for the week after we returned from our vacation. Still July. Works for us. And, then, that date was not going to work because so much work needed to…

…Set…

Proud of clearing the burgeoning shelves in his bedroom of over 900 DVDs. We're getting there....Bryan is slowly but surely packing up years of DVD and book collections. Six DVD binders have been filled with his films. It took a bit of convincing to accomplish this task, but it is almost done. Removing the cumbersome…

Ready…

Three hundred and fifty medals on Bryan's bed from 38 years of Special Olympics competition! We are gearing up for yet another change for Bryan. His tenure at the little red brick Cape Cod in Hatboro is coming to a close. Move in date to a new house in Warminster will be sometime at the…

Celebrations

A mutual birthday hug from grandson to grandmother. 104 and 44. May is always a super-busy month for celebrations. This year things were even more chaotic. Bryan's move to a new place. Returning to strength and health. The removal of his picc line. Resuming his job at Ann's Choice. Birthdays. Mother's Day. Memorial Day. Adjusting…

Release!

Yesterday Bryan's picc line was removed from his arm. I wish we were there for the occasion, but these pictures, snapped by Shared Wellness staff, are worth a thousand words! Bryan has had some sort of intravenous needle in his arm for over one month. Forty-two days to be exact. His joy at being released…

SUPER scared!

Before the procedure. Bryan has gone from "the frying pan into the fire". In my last blog, I was happy he was feeling good enough to make meals for the homeless. Little did I know that all hell would break loose the following day. At 4:30 a.m. he awoke crying and screaming in pain from…

Scared

The text came this morning. Trying to translate it with my husband, we hit upon the words "hospital" and "catsuit" - aka "cat scan"? Alarming for sure. And, so, I called him. He was with his staff in a noisy environment so I couldn't hear him well. Add to that the stuttering with him crying…

Socks!

Sporting his new goatee, Bryan wants to look like his Uncle Brad. March 21st. World Down Syndrome Day. Time to wear your crazy mismatched socks! Why? To raise awareness, to show support for those individuals with Down Syndrome, to start conversations. To help people like Bryan find a voice. The theme is "Improve Our Support…

Medicaid

These two stand to lose everything! This is a call to action! I am hoping that you are loyal to the “Bryan Cause” and care for his well-being as a result of you being a blog-follower. If so, please read the information below and act immediately before it’s too late. My mother, Bryan’s Grandma, will…